Using sport to cope with cystic fibrosis

Résumé : After a relatively normal childhood, people suffering from cystic fibrosis reach a stage where they are progressively confronted with increasingly crippling functional limitations. Some of them, nonetheless, regularly undertake physical and/or sporting activity. It is thus interesting to examine the process of commitment to a practice that is based on the idea of progress and often exceptional performance by the body but which, for these people, makes the decline of their physical capacities particularly salient. A qualitative survey combines participant observation with 35 semi-directive interviews with sportsmen and sportswomen with cystic fibrosis. Their commitment to sport, constructed by/with the family, is initially first aimed at maintaining a form of control over their identity but progressively becomes a means of controlling the illness trajectory. A lung transplant, when possible, relaunches the practice in relation to its initial interests.
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Journal articles
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https://hal-univ-lyon1.archives-ouvertes.fr/hal-02336779
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Submitted on : Tuesday, October 29, 2019 - 9:58:28 AM
Last modification on : Tuesday, November 19, 2019 - 2:38:36 AM

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Amélie Fuchs, Claire Perrin, Fabien Ohl. Using sport to cope with cystic fibrosis. Loisir et Société / Society and Leisure, 2014, 37 (2), pp.189-204. ⟨10.1080/07053436.2014.936161⟩. ⟨hal-02336779⟩

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